Seeing what juvenile Huntington disease has done to Erin in such a short amount of time is devastating. Huntington disease is like having the symptoms of ALS, Alzheimer’s and schizophrenia all in one disease. It is a progressive, severely debilitating, terminal brain disease. Additionally, it’s genetic - a HD patient has a parent with HD, and the odds of passing the gene to any offspring are 50/50. This means that HD devastates entire families.
If you don’t know what HD is, please take some time to learn more about it (and donate so we can find a cure!). Please also do the Pie in the Face challenge, even if you don’t donate!
I know Cindy and Erin, the individuals in the Pie in the Face video. They are AMAZING people. Cindy has been such an amazing mom and caregiver to Erin throughout her journey. Despite having JHD, Erin is hilarious and always smiling. Despite her circumstances, she brings me hope. Erin and Cindy have a very welcoming home, and I always feel at ease and amongst good friends when I go to their place.
It hurts me to know that Erin, such a kind individual, has to deal with losing her father and her mobility to such a horrible disease. Nobody deserves HD, but it’s especially devastating when HD strikes such an amazing young woman. I wish she was looking forward to a date or worrying about petty drama, not thinking about HD and looking forward to her new pink wheel chair. I wish she ate ice cream and smoothies regularly because they’re delicious, not because they’re easier to swallow. I wish her hilarity wasn’t articulated with slurred speech, though I am so happy that she is still such a funny individual.
It hurts me to know that, without a cure, I won’t be able to hang out with Erin and watch movies and eat junk food on her porch while she sits there grinning in just a few years. Without a cure, she won’t even remember me or all the fun times we had. Cindy, such a strong and determined woman, will lose her daughter without a cure. I beg anyone that is reading this to learn as much as they can about HD, reblog this post, donate if they can, and if they can’t, to at least do the Pie in the Face challenge so we can get the word out - Huntington’s is here, and we need a cure.